Family appeals for £65,000 to fund life-changing US op

Mum Sophie and Camren

Mum Sophie and Camren

First published in News Oxford Mail: Photograph of the Author by , Reporter covering Blackbird Leys and Greater Leys. Call me on 01865 425403

CAMREN Haines cannot stand due to cerebral palsy, and has to use his arms to pull himself along the playroom carpet.

But now, after doctors told his family that he would always need a wheelchair, there is a chance that Camren could walk.

The Kidlington four-year-old’s family need to raise £65,000 to travel to America for a life-changing operation that will enable him to take his first steps.

His mum Sophie said: “The expert in America said he will be able to walk with a walking frame.

“I have hope that maybe Camren will surpass what doctors think now and will be able to walk unaided. The sky’s the limit.”

Camren is using two-year-old Sophia Aitken, from Witney, as his role model, after she successfully had the procedure last year and can now take her first, tentative, steps unaided.

Camren was born prematurely at 27 weeks. When he was one year old, the family was told he had global developmental delay.

Three months later it was confirmed he had spastic quadriplegia, a form of cerebral palsy.

Last year Oxford Mail readers helped pay for Camren to have specialist physiotherapy at Footsteps in Dorchester-on-Thames, but now the stakes are higher.

Related links

Full-time mum Mrs Haines, and husband Terry, 34, a commercial vehicle parts adviser, are determined to raise the cash. She said: “We’re going in January and I’m confident we’ll get it by then.”

The 28-year-old will be organising fundraising events in the coming months and has enlisted the support of charity Tree of Hope, which helps raise the profile of fundraising causes for children in need of medical equipment or treatment.

Camren, who begins school at West Kidlington Primary School in September, has been accepted to the programme at St Louis Children’s Hospital in St Louis, Missouri, and the money will be put towards flights, accommodation, operation costs, and equipment and physio for the weeks after the operation.

Also mum to 10-year-old Bethany, Mrs Haines said: “To be able to keep up with his friends and do normal things that other children do at his age would be amazing. The thought of him never dancing or playing football brings me to tears.”

She said: “Having this operation will drastically transform Camren’s future and maybe one day he will be able to realise his dream of becoming a fireman or a helicopter pilot.”

HOW SURGERY WORKS

THE selective dorsal rhizotomy (SDR) operation sees the bones of the spine in the lower back area opened to reveal the spinal cord.

Abnormal nerve roots causing the spasticity are identified by passing a small electrical current through them. The nerves that are not transmitting effectively, causing painful spasms and tensions, are cut.

The operation lasts about three hours, and patients need to lie completely flat for three days after the procedure.

Most NHS trusts do not fund the surgery, and UK doctors are reluctant to perform on children younger than eight or nine.

St Louis Children’s Hospital has the world’s leading SDR team, which has given hundreds of British children the operation.

  • Our top stories:

Firefighters battle loft blaze in Witney

Oxford Mail: Fire engine Oxfordshire

10:01am Sunday 21st December 2014

FIREFIGHTERS were able to stop a roof fire spreading and destroying the rest of the house last night.

What brilliant picture is in our Oxford Mail Advent Calendar today?

Oxford Mail:

6:00am Tuesday 9th December 2014

December is Advent Calendar time and we have a special new interactive graphic for you each and every day until Christmas Eve. I've chosen the best 24 pictures of 2014 and I'll be unveiling one a day - so what is behind's today's door?

Skye Hall's family: Our first Christmas without our brave son

Oxford Mail:

9:00am Saturday 20th December 2014

LOOM bands are taking over the house of Skye Hall’s family as they prepare to spend their first Christmas without the brave youngster who died in August.

Hudspeth backs councillors in demand to be told man's pay in allowances row

Oxford Mail: Ian Hudspeth

8:30am Saturday 20th December 2014

OXFORDSHIRE County Council leader Ian Hudspeth has backed councillors Rodney Rose and Kevin Bulmer who asked a voter to reveal his wages when he challenged them over a 19 per cent hike in their allowance.

Two arrested for GBH after man injured in fight

Oxford Mail:

5:24pm Saturday 20th December 2014

Two teenagers from Witney were arrested last night after a man suffered a broken arm.

Oxfam "accepts" tweet ruling

Oxford Mail:

2:23pm Saturday 20th December 2014

OXFAM has said it accepts criticism from charity regulators over an alleged “party political” tweet about a “perfect storm” of poverty.

Comments

Comments are closed on this article.

Send us your news, pictures and videos

Most read stories

Local Info

Enter your postcode, town or place name

About cookies

We want you to enjoy your visit to our website. That's why we use cookies to enhance your experience. By staying on our website you agree to our use of cookies. Find out more about the cookies we use.

I agree