I WAS told this week that I wouldn't need a wheelchair until I was like 70 or something ha ha. Unless there is a miracle cure sadly this will not be the case, me being me I was quick to correct and then the hole digging began...

Not that I minded of course maybe that's some strong positivity right there but I sometimes wonder if people even realise how serious my condition actually is.

Do they just see a woman hobbling and think "oh she can't walk proper like" and that's that?

I have also been mistaken for having an injury like I will heal within a few weeks.

Another misconception is that folk think it is just my legs. No no no people it is my arms and shoulders as well.

You can't really tell from looking at me though so all is forgiven. You'd have to be with me 24 hours a day to truly see me struggle.

Small things I'm starting to notice, like when I hand out change to people I can't quite get my arm out and quite often I have to lift my left arm with my right when reaching up for something as my left side is weaker and it just can't get up there by itself. A problem when I go to brush my hair.

Luckily I have a shelf in my bathroom so I rest my elbows on that otherwise I couldn't put my hair up that I've neglected to get cut in well over a year. Honestly it hasn't been this long since I was a teen and back then there was no issue.

Luckily there are many adaptations out there and things can be resolved by looking at it in a different light.

Motorbike riding for example.

I've been eyeing up motor trikes recently and it's definitely a direction I want to go.

Of course you get them same folk that think they are not sensible or practical and what happens when it rains Emily? Errrr well I will have waterproof gear and it won't be an issue? Is life not for living? Rain, no rain, who cares?

Not only that but when I am eventually wheelchair/power chair bound (aged 70!) I can get a motor trike adapted so I can transfer from one to the other and have me chair attached to the back of the trike! I'll be a biddy on wheels!

Trikes can be adapted so I'm thinking automatic with hand braking so no feet need to be used and you can also get straps to secure my somewhat uncontrollable legs for safety. It would make me so happy to have a three-wheeler and to go riding around with people.

I could tour across Europe, two sticks and three wheels.

I have a third stick now. A proper walking stick but a trendy-ish looking one. It's fold up in case I do go riding on the back of a motorbike any time soon and I can shove it in my backpack.

It feels weird though like it isn't giving me much support maybe I just need to get used to it. A stick for all occasions and situations is my goal.

* EVERY year, Oxford’s Town & Gown fun run raises tens of thousands of pounds for research into trying to find treatments for muscular dystrophy. Emily Bonner, 30, who was diagnosed with limb girdle muscular dystrophy in 2014, tells us what life is like with the condition