Family appeals for £65,000 to fund life-changing US op

Mum Sophie and Camren

Mum Sophie and Camren

First published in News Oxford Mail: Photograph of the Author by , Reporter covering Blackbird Leys and Greater Leys. Call me on 01865 425403

CAMREN Haines cannot stand due to cerebral palsy, and has to use his arms to pull himself along the playroom carpet.

But now, after doctors told his family that he would always need a wheelchair, there is a chance that Camren could walk.

The Kidlington four-year-old’s family need to raise £65,000 to travel to America for a life-changing operation that will enable him to take his first steps.

His mum Sophie said: “The expert in America said he will be able to walk with a walking frame.

“I have hope that maybe Camren will surpass what doctors think now and will be able to walk unaided. The sky’s the limit.”

Camren is using two-year-old Sophia Aitken, from Witney, as his role model, after she successfully had the procedure last year and can now take her first, tentative, steps unaided.

Camren was born prematurely at 27 weeks. When he was one year old, the family was told he had global developmental delay.

Three months later it was confirmed he had spastic quadriplegia, a form of cerebral palsy.

Last year Oxford Mail readers helped pay for Camren to have specialist physiotherapy at Footsteps in Dorchester-on-Thames, but now the stakes are higher.

Related links

Full-time mum Mrs Haines, and husband Terry, 34, a commercial vehicle parts adviser, are determined to raise the cash. She said: “We’re going in January and I’m confident we’ll get it by then.”

The 28-year-old will be organising fundraising events in the coming months and has enlisted the support of charity Tree of Hope, which helps raise the profile of fundraising causes for children in need of medical equipment or treatment.

Camren, who begins school at West Kidlington Primary School in September, has been accepted to the programme at St Louis Children’s Hospital in St Louis, Missouri, and the money will be put towards flights, accommodation, operation costs, and equipment and physio for the weeks after the operation.

Also mum to 10-year-old Bethany, Mrs Haines said: “To be able to keep up with his friends and do normal things that other children do at his age would be amazing. The thought of him never dancing or playing football brings me to tears.”

She said: “Having this operation will drastically transform Camren’s future and maybe one day he will be able to realise his dream of becoming a fireman or a helicopter pilot.”

HOW SURGERY WORKS

THE selective dorsal rhizotomy (SDR) operation sees the bones of the spine in the lower back area opened to reveal the spinal cord.

Abnormal nerve roots causing the spasticity are identified by passing a small electrical current through them. The nerves that are not transmitting effectively, causing painful spasms and tensions, are cut.

The operation lasts about three hours, and patients need to lie completely flat for three days after the procedure.

Most NHS trusts do not fund the surgery, and UK doctors are reluctant to perform on children younger than eight or nine.

St Louis Children’s Hospital has the world’s leading SDR team, which has given hundreds of British children the operation.

  • Our top stories:

Update: Bullfinch: More than 350 youngsters believed to have been abused as campaigner calls for action not apologies

Oxford Mail: Marilyn Hawes

7:46am Monday 2nd March 2015

MORE than 350 youngsters in Oxfordshire have been identified as victims of grooming gangs, the Oxford Mail understands.

Discovery: Remains of a woman and a coin dating from the 1600s are unearthed

Oxford Mail:

9:00am Monday 2nd March 2015

THE SKELETON of a woman thought to be nearly 400 years old has been unearthed at an Oxford college.

Parents across Oxfordshire discover fate of child's secondary school place

Oxford Mail: New Oxfordshire county council logo

8:44am Monday 2nd March 2015

PUPILS across the county will find out today whether they have got their first-choice of school as Oxfordshire County Council issues places for secondary schools today.

Grannies put on a unique trolley dance

Oxford Mail:

8:30am Monday 2nd March 2015

TWO dancing grannies took over the streets of Oxford as the city’s main annual dance festival got into full swing.

Minister announces consultation on new rights for disabled people after death of Connor Sparrowhawk

Oxford Mail:

8:30am Monday 2nd March 2015

PLANS for new legislation following the death of a Headington boy will be announced by the Minister for Health this week.

New bridge over Thames will provide off-road cycle link after Government puts up cash

Oxford Mail:

8:00am Monday 2nd March 2015

A £3m cash boost will make a proposed cycling link between East Oxford and the city centre using a new bridge over the Thames a reality.

Comments

Comments are closed on this article.

Send us your news, pictures and videos

Most read stories

Local Info

Enter your postcode, town or place name

About cookies

We want you to enjoy your visit to our website. That's why we use cookies to enhance your experience. By staying on our website you agree to our use of cookies. Find out more about the cookies we use.

I agree