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6:10am Saturday 18th April 2009
OXFORDSHIRE couples seeking IVF fertility treatment have called on health officials to end to what they see as age discrimination over funding.
Three weeks ago Richard Mackenzie, from Witney, started a petition calling for Oxfordshire NHS Primary Care Trust to rethink its policy, which he says means couples can be deemed too young or too old to be eligible for NHS-funded IVF treatment, while people living in other PCT areas can get treatment.
So far, 203 people have signed the petition and yesterday Mr Mackenzie and a group of women who have been denied treatment by the NHS handed over the petition to the PCT.
Mr Mackenzie, 29, and his 26-year-old partner have been trying for six years to have a baby and have been told the only chance they have of conceiving is through IVF treatment.
But the PCT says it will not pay for the treatment, which costs an average of £3,000 per cycle, because the couple are too young. Private treatment costs about £10,000 per cycle.
Despite guidance issued in 2004 by the National Institute for Clinical Excellence stating that treatment should be given free of charge to couples in which the woman is aged between 23 and 39, Oxfordshire PCT will only pay for IVF for couples aged between 35 and 38.
Mr Mackenzie said: “It’s age discrimination. Having a child is a right, not a privilege.
“We have been told by our clinician that at the moment our chances of IVF treatment working are about 50 per cent.
“If we wait until my partner is 35, our fertility drops to 23.6 per cent.
“The ironic thing is if we were to live in Coventry, we would be given the treatment for free at the John Radcliffe Hospital in Oxford.”
Coventry PCT funds treatment for women aged between 23 and 40, while Swindon PCT funds treatment for couples aged between 30 and 39.
Oxfordshire is part of the NHS South Central Strategic Health Authority area, which includes Hampshire, the Isle of Wight, Berkshire, Buckinghamshire and Milton Keynes PCTs.
The PCT refused to say how many couples were waiting for IVF in Oxfordshire and said the way it funded treatment was being reviewed as part of a consultation to introduce a single policy across the South Central region.
A spokesman said it was also considering lowering the age bracket for treatment to 30 to 34 and added: “There are currently two different policies in NHS South Central, which were inherited from the predecessor organisations.
“We want to ensure everyone living in the area has the same access to services.
“The petition will be taken into account during the decision-making about assisted conception policy.”
Mr Mackenzie said: “We aren’t asking for extra funding, all we’re asking for is to have the funding we will be entitled to anyway, earlier, when it’s more likely to be successful.”
He is hoping to raise the issue at next month’s meeting of the Oxfordshire joint health overview and scrutiny committee, at Oxford Town Hall on Thursday, May 14.
To sign the petition, go to gopetition.co.uk/online/26607.html
WHAT IS IVF?
In-vitro fertilisation (IVF) is a medical procedure to help some infertile couples.
A woman’s ovaries are stimulated with hormone treatment to produce multiple eggs.
The eggs are then fertilised with her partner’s sperm in a laboratory.
This process produces several fertilised embryos, some of which are placed in the woman’s womb and the others are frozen for possible use, if further treatment cycles are needed.
To qualify for IVF treatment one, or both, of the couple must have been diagnosed with a fertility problem and must have been infertile for at least three years.
Couples who already have a naturally-conceived child do not qualify and if a woman has a Body Mass Index of below 19 or above 29.9 she will not be eligible.
Only non-smoking couples are accepted on the IVF treatment waiting list.
BillWhite, Norfolk says...
7:24am Sat 18 Apr 09
Mirella, Bicester says...
7:45am Sat 18 Apr 09
stephen_byrne, Leintwardine says...
8:52am Sat 18 Apr 09
littlebear, Abingdon says...
9:18am Sat 18 Apr 09
dhb, oxford says...
9:46am Sat 18 Apr 09
woteva, Eynsham says...
10:08am Sat 18 Apr 09
philg, Oxford says...
10:30am Sat 18 Apr 09
TL, Chipping Norton says...
10:35am Sat 18 Apr 09
TL, Chipping Norton says...
10:40am Sat 18 Apr 09
TL wrote:I mean partner - just the one!
Lets remember the NICE guidelines. It is not just about age but all of the other factors they are not adhering to. My partners has an adult child from a relationship 20 years ago so I have no rights to treatment.
Heluerto, Banbury says...
11:02am Sat 18 Apr 09
someguyfromhereandthere, says...
11:10am Sat 18 Apr 09
philg wrote:I take it that you are not then familiar with the Universal Declaration of Human Rights which was adopted on 10 December 1948 by the General Assembly of the United Nations of which the United Kingdom is a member country.
Mr Mackenzie said: “It’s age discrimination. Having a child is a right, not a privilege." Golly. A right? Really? I think he is mistaken.
jamiek, cumnor says...
11:13am Sat 18 Apr 09
connielarsen, Sydney, Australia says...
12:08pm Sat 18 Apr 09
helenryle, Tralee says...
12:09pm Sat 18 Apr 09
Heluerto, Banbury says...
12:39pm Sat 18 Apr 09
jamiek wrote:The NHS are quite happy to put funds in when someone has injured themselves due to dangerous sports or excessive drugs or alcohol - these are life choices that people have made. Why then when it is not a life choice to be infertile should we be left to suffer with the mental traumer that no-one who hasnt experienced it could ever understand.
The NHS should be about helping sick people not funding peoples desire for chilren!!!!!!!!!!!!! !
Heluerto, Banbury says...
12:44pm Sat 18 Apr 09
Heluerto wrote:that should of course have read - I don't smoke!
jamiek wrote: The NHS should be about helping sick people not funding peoples desire for chilren!!!!!!!!!!!!! !The NHS are quite happy to put funds in when someone has injured themselves due to dangerous sports or excessive drugs or alcohol - these are life choices that people have made. Why then when it is not a life choice to be infertile should we be left to suffer with the mental traumer that no-one who hasnt experienced it could ever understand. I don't spoke, drink or take drugs. I have worked my entire life and live within my own means. I have never received funding for higher education or sickness from the government. Why then when I want funding for this one thing which I need through no fault of my own am I not just denied, but denied because of age discrimination.
someguyfromhereandthere, says...
12:49pm Sat 18 Apr 09
Heluerto wrote:Well said Heluerto!
jamiek wrote: The NHS should be about helping sick people not funding peoples desire for chilren!!!!!!!!!!!!! !The NHS are quite happy to put funds in when someone has injured themselves due to dangerous sports or excessive drugs or alcohol - these are life choices that people have made. Why then when it is not a life choice to be infertile should we be left to suffer with the mental traumer that no-one who hasnt experienced it could ever understand. I don't spoke, drink or take drugs. I have worked my entire life and live within my own means. I have never received funding for higher education or sickness from the government. Why then when I want funding for this one thing which I need through no fault of my own am I not just denied, but denied because of age discrimination.
dolin0305, Norfolk says...
2:08pm Sat 18 Apr 09
AshleyLewis, Chesapeake,US says...
2:44pm Sat 18 Apr 09
sternian, Witney says...
3:29pm Sat 18 Apr 09
someguyfromhereandthere, says...
6:09pm Sat 18 Apr 09
sternian wrote:Again, some excellent points made.
Oxfordshire NHS is sitting on a forecast surplus of £2 million. They have just set a budget of £1 million to bribe GPs NOT to refer patients to hospital Consultants which is a high risk strategy for us all locally. The NHS centrally has a surplus of £2 BILLION. We pay an awful lot to the many managers of 150 PCTs in the UK and all the job duplication that goes with it. The NHS is a black hole for hard earned taxpayers cash with NO ACCOUNTABILITY or TRANSPARENCY. It has become a comfortable club for highly paid "bean counters". Let's change the culture and put Patient Care first for a change!
Eric Otto, Marriemont says...
6:28am Sun 19 Apr 09
stellasolomons, London says...
9:23am Sun 19 Apr 09
Heluerto, Banbury says...
9:43am Sun 19 Apr 09
stellasolomons wrote:This is biased sensationalised rubbish from someone who clearly doesnt like the progressive achievements of the medical industry.
As the donor-conceived have a thirty percent stronger chance of having birth defects, statistically someone will be born to live the life of a deformed adult, born on purpose! This is sad enough when it happens out of the blue but _ Please see > http://beware-of-the -fertility-indfustry . blogspot.com
Joanna C, bicester says...
10:31am Sun 19 Apr 09
someguyfromhereandthere, says...
11:05am Sun 19 Apr 09
Joanna C wrote:Joanna,
I must say that when I first heard about the problems that you were having with "age discrimination" I was surprised that Oxford had changed it's policy. I too had to go down the path of IVF treatment and was told that although I would have to go on a waiting list there was no issue with my age (at the time I was 25). That was only 4 years ago. As for people who say that there are other causes that need desperately funding, I can totally appreciate and agree that the nhs really should be paying for these. But having said that until you have been put in the situation where you have been told that you cannot have children unless you have IVF,then no-one can ever understand the heartache, emotional turmoil and stress that is put upon a relationship. It makes me really angry to think how much money the government wastes in this country and after promising to improve the nhs in all departments they are now forcing trusts to make cut backs. I really hope that this campaign is successful and would just like to say to anyone who is trying, never stop believing.
Paddy Landau, Oxford says...
12:23pm Sun 19 Apr 09
BockBock, Oxford says...
1:39pm Sun 19 Apr 09
Williamhordle, wantage says...
5:46pm Sun 19 Apr 09
Heluerto, Banbury says...
5:54pm Sun 19 Apr 09
Williamhordle wrote:but they have been told IVF is the ONLY way to conceive, naturally falling pregnant is not an option for them.
I think they are right to deny young couples with IVF. They have to distribute the money into the most vialable cause. Now at 26 and 29 they have many years to continue trying and so I think NHS funded IVF treatment should be reserved for those as a last chance. At 26 and 29 they can continue to try natuarally and then aply for IVF at a later fate when they come inside the age guide lines.
Quentin Walker, Oxford says...
6:58pm Sun 19 Apr 09
someguyfromhereandthWhere in Article 16 does it mention the right to IVF?
ere wrote:
philg wrote:I take it that you are not then familiar with the Universal Declaration of Human Rights which was adopted on 10 December 1948 by the General Assembly of the United Nations of which the United Kingdom is a member country.
Mr Mackenzie said: “It’s age discrimination. Having a child is a right, not a privilege." Golly. A right? Really? I think he is mistaken.
Article 16.1 of the declaration clearly stats that;
“Men and women of full age, without any limitation due to race, nationality or religion, have the right to marry and to found a family.”
It’s there in black and white.
someguyfromhereandthere, says...
7:26pm Sun 19 Apr 09
Quentin Walker wrote:No where Quentin, but then again I never said or implied that it did.
someguyfromhereandth ere wrote:Where in Article 16 does it mention the right to IVF?philg wrote: Mr Mackenzie said: “It’s age discrimination. Having a child is a right, not a privilege." Golly. A right? Really? I think he is mistaken.I take it that you are not then familiar with the Universal Declaration of Human Rights which was adopted on 10 December 1948 by the General Assembly of the United Nations of which the United Kingdom is a member country. Article 16.1 of the declaration clearly stats that; “Men and women of full age, without any limitation due to race, nationality or religion, have the right to marry and to found a family.” It’s there in black and white.
oxmale, Oxford says...
8:12pm Sun 19 Apr 09
Mirella, Bicester says...
8:33pm Sun 19 Apr 09
Mirella, Bicester says...
8:35pm Sun 19 Apr 09
someguyfromhereandthere, says...
8:55pm Sun 19 Apr 09
Mirella wrote:Well put Mirella...
that is bit harsh! Why would one be so against IVF for younger people if it's clearly the only option - and even if there might be a change to conceive naturally why should you wait until you are older and in more risk, less like to success with the IVF and therefore need more goes - which would be again expensive. You also need more tests and monitoring if while pregnant if you older - so I really do not see the point arguing against higher age limit. I also agree with one comment earlier - if NHS willing to fund "life choice" injuries, why not IVF.
Sally73, banbury says...
10:45pm Sun 19 Apr 09
maxsays, socorro says...
4:34am Mon 20 Apr 09
letty1977, Kidlington says...
9:27am Mon 20 Apr 09
paulhastings, Leamington Spa says...
12:06pm Mon 20 Apr 09
paulhastings, Leamington Spa says...
12:07pm Mon 20 Apr 09
epwilliamson, Faringdon says...
12:44pm Mon 20 Apr 09
angelapage, Nottingham says...
3:12pm Mon 20 Apr 09
Lee Fowler, Banbury says...
3:43pm Mon 20 Apr 09
sally52370, Beenham says...
6:37pm Mon 20 Apr 09
moshy29, Newbury says...
8:09pm Mon 20 Apr 09
melsoxford, Oxford says...
10:13pm Mon 20 Apr 09
connielarsen wrote:My husband & I have good jobs, family and friends in Oxford. It seems unreal that we could receive the treatment we need to start a family if we lived elsewhere in the country - because I am fall outside Oxford's age restrictions. Sounds like discrimination to me!
maybe you should consider moving to a more family friendly part of the country? Good luck, just persevere and eventually your quest will be successful
rilmeg, banbury says...
10:32pm Mon 20 Apr 09
EmmaBS, Oxford says...
5:14pm Tue 21 Apr 09
old zimmer, says...
5:39am Wed 22 Apr 09
Peat, Littlemore says...
10:51am Wed 22 Apr 09
EmmaBS, Oxford says...
11:19am Wed 22 Apr 09
Peat, Littlemore says...
11:25am Wed 22 Apr 09
EmmaH81, Leeds says...
11:02am Thu 23 Apr 09
Ellen, Bicester, Bicester says...
1:50pm Thu 23 Apr 09
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someguyfromhereandthere, says...
6:34am Sat 18 Apr 09
In recent weeks I have read in the Oxford Mail about patients trying to get life extending cancer drugs and gender reassignment only to be refused by the Oxfordshire Primary Care Trust. Now they are discriminating on young couples too that want to start a family. And the biggest insult is that in all cases, if these Oxfordshire patients lived in other certain PCT areas that they WOULD be funded and treated by the NHS. This is a local and national scandal. And every Oxonian should fight against it.
This is disgraceful and I hope that the right people at the top of Oxfordshire PCT will be held fully accountantable for the devastation that their discriminative policies have caused.
My sympathies go to all patients that are suffering as a result of our poorly run PCT.