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Cancer campaigner faces up to finding yet more tumours
CANCER campaigner Clive Stone is certain doctors will find more brain tumours when he has his latest scan today.
But he said his ongoing battle with the disease – 34 tumours in three years – will not deter his fight for patients.
The 66-year-old won approval for NHS patients to get a kidney cancer drug and later a fund for cancer drugs.
Today Mr Stone – who lost wife Jan to breast cancer in 2011 aged 61 – will have his regular six-month scan at Oxford’s Churchill Hospital.
The father-of-two and grandfather-of-one said: “I know they will find another load of tumours. Last time they said they found eight and I just said ‘treat them’.
“You have just got to steel yourself to it.”
The committed Christian added: “I do a lot of prayer, and I am sure your attitude of mind plays a big part in your long-term condition, so I am still bouncing around.”
His journey to fight for cancer patients began in 2007 when he was diagnosed with kidney cancer.
In 2010 he defeated the National Institute for Health and Care Excellence – which recommends what drugs the NHS should use – for life-extending drug Sunitinib to get state funding.
That year he persuaded Prime Minister David Cameron to give £200m for a cancer drug fund with £15m for radiotherapy for a wider range of cancers.
The cancer spread to his brain and he had two operations to remove tumours in 2011 on the NHS.
But he then had to pay £15,228 each for two radiosurgery operations in 2012.
The fund – which began in April 2013 – meant he has not had to pay for his last operation in July, in which eight brain tumours were removed.
He still checks the internet for stories of people denied treatment.
He said: “People phone me up and say they are unhappy with their diagnosis, and I say to them challenge every diagnosis, go for a second opinion.
“If you are just about to die, getting six months makes an awful lot of difference.”
Looking to 2014, he said he wants to “embarrass the government” to force “super rich” firms like Amazon to pay more taxes. Mr Stone, who used to work as a fraud investigator for banks, said: “If we could get that money in the NHS we could properly care for the elderly.”
Mr Stone, who has earned an MBE for his campaigning in 2011, said: “There are so many people out there who have got this diagnosis and think it is the end, which I did at first.
“I know obviously that I haven’t got long to go but I am trying to show people there is life after diagnosis.”
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